Rachel and Viji: The Christmas party super dancers

By Rick Burns (as published in the July 2023 ABLE2 Monthly Moments Newsletter)

“They are the Christmas party super dancers!” I enthusiastically pronounced to my wife as we rolled out of the parking lot on an overcast but otherwise pleasant June afternoon.  

I had just finished having a hot beverage with Viji and Rachel, two friends that first met through ABLE2’s matching program. 

I was the first to arrive for our coffee-chat at the Starbucks in College Square, bristling full of young students and afternoon shoppers. The purpose of this informal interview was to profile a successful, long-term match to include in an article in ABLE2’s monthly newsletter.  

As I waited a few moments for Viji and Rachel to arrive, I suddenly wondered how I would know who they were? I instantly recognized them however as they walked through the door – I remembered seeing them at previous events, notably ABLE2’s annual Christmas party. 

How could I forget? Each year, Viji and Rachel tend to be one of the first ones on the dance floor, and to say they move with joy and enthusiasm would be great understatement. I clearly remember my wife (unsuccessfully) trying to get me to bust a move at ABLE’s marquis annual event, nodding towards Viji and Rachel: “But look how much fun they are having!”

It was a great start to the interview because I felt like I already kind of knew them.  

My initial impression as we greeted each other was how natural and comfortable they seemed with each other. They gave off the vibe of two old friends meeting for a coffee to chat and catch-up – a casual, nothing-to-see here type of Saturday afternoon hang out. And my initial instincts proved to be correct. In fact, when asked, like a lot of old friends, they could not quite remember how long exactly it had been since they first met.

“17, 18 years….2004 maybe” Viji responded to my first inquiry about the length of their friendship. 

As I came to uncover, their relationship has grown substantially over the almost two decades since they first met. Going to coffee shops, seeing movies, hanging out, chatting over Facebook……they do all of the things you would think of that are typical of strong, mutually beneficial relationship.

They went on to describe what they meant to each other and that, like any other solid friendship, they can tell each other anything and play a big part in each other’s lives. 

What is your most memorable moment together?” I asked as I perused a list of pre-selected interview questions I had on hand. There was a bit of pause, no one single moment immediately jumped to either of them. 

Rachel then just got to crux of it all with one answer: “Viji is really easy to talk to, we just have fun together, it is great to have a friend that understands you.” 

I asked Viji: “Could you point to one thing you have learned from Rachel?”

“She forces me out of my comfort zone somethings……..like dancing!!” Viji responded with a smile. 

As we spoke, I found out that not only is Rachel one ABLE2’s best Christmas partiers, she has previously taken Jazz dancing lessons and used to be a regular at the Dovercourt dances. She reiterated, while Viji nodded her head, that dancing was a great to release energy and just have fun. 

It was at this point where this interviewer may have made a big mistake. Perhaps out of nervous politeness, I ever so casually mentioned that maybe I would hit the floor at the next Christmas party. Upon telling my wife about this off-hand commitment I made, she smiled and said she could not wait. My goodness what have I done, I (half?) jokingly thought to myself. 

As we finished up our conversation, I posed my last and ultimate question: “What would you say to someone who is interested in becoming involved in ABLE2’s matching program? The response came quick: “Just do it! You can expand your social network, do interesting things and it is a great way to make a new friend!” 

In fact, as we spoke, it was pointed out that there would be no impact on their friendship at all if ABLE2 stopped existing tomorrow, which is the ultimate nod to the effectiveness of the matching program. While ABLE2 brought them together, it is their commonalities and genuine connection that has nurtured their relationship over the years. 

Rachel and Viji’s friendship is something not everyone in the world is lucky to have. In a modern life, tied to our screens, always playing catch up – we could all benefit from having a connection like theirs. And that, dear reader, brings us to the heart of it all: who among us could not use another good friend? 

I look forward to seeing Viji and Rachel at the next ABLE2 event. And I am left wondering if they will hold me to my mention of dancing at the next Christmas party? We shall see…

By Rick Burns

Voices of ABLE2 – Social Housing

Written by Julie Cashman

(as published in the July 2023 ABLE2 Monthly Moments Newsletter)

Hello,

My topic for today is social housing from my point of view so people can see the good points and all it has to offer for people like me on ODSP

I am 42 and I waited patiently on the social housing registry for 11 years to get a 1-bedroom apartment.

Every Christmas was my due date to call into the Social Registry and update my file once a year. My mom and I picked Christmas/December because it was an easy time to remember for both of us. I would also ask the Social Registry to send me a list so I could choose more options of housing in Ottawa each year.

After 11 years of waiting and choosing, they finally called me in 2021. I still remember the lady in the office of Social Registry when I first applied who gave me a hint, a huge one, don’t limit yourself to one area of the city, choose more options from the list. 

And so, I did, and that’s what got me in faster to social housing. 

So, I moved into social housing, and got the keys, and signed the lease, and made lots of friends. I now volunteer in our programs for Veggie Friday that happens every Friday, and Breakfast Tuesday and I benefit from these two programs, and also the foot lady from southeast Ottawa comes to take care of my feet every six weeks.

My rent is a lot cheaper, under $200 for a 1 bedroom providing my income does not change for ODSP.

We have to submit our notice of assessment along with our ODSP papers, and a pink slip we get from Ottawa housing to tell Ottawa housing we are doing our income taxes each year. It lets them know we are still at the same income level to keep our houses. If we do not comply with this or fail to send that information we lose our housing and our apartment goes back up to market rent and they kick us out.

Since moving here, I have made more friends. I love volunteering. I am thriving and saving more money. And that is the benefits of social housing. I do not have to worry anymore about paying market rent, or worrying about rising food cost, or having to put clothes on my back, because I can afford all theses things.

Thank you very much for listening to me today and I hope it gives you all a great knowledge of social housing and provides you with better feedback and gives you some more idea that social housing is better life.

Merci and thank you.

Julie Cashman

Chair, Consumer Advisory Committee

Celebrating National AccessAbility Week

Last week we celebrated National AccessAbility Week. On Wednesday May 31, 2023, I joined the City of Ottawa 20th annual AccessAbility Day activities with Mayor Sutcliffe delivering the Proclamation of AccessAbility Day in Ottawa followed by a variety of engaging speakers who shared their perspectives on the topic.

On Thursday June 01, 2023, myself and the team at ABLE2 had the honor of meeting with Stephanie Cadieux, Canada’s Chief Accessibility Officer. Ms. Cadieux is an independent special advisor to the Ministry of Employment, Workforce Development and Disability Inclusion. Her role, the first in Canada, was created under the Accessible Canada Act. She is responsible for monitoring and reporting on outcomes achieved under the Act, as well as providing the Minister of Employment and Social Development, The Honourable Carla Qualtrough with advice on systemic and emerging accessibility and disability inclusion issues.

The Accessible Canada Act (ACA) is a landmark federal legislation in Canada aimed at creating a barrier-free society by 2040. Ratified in 2010, the United Nations Convention on the Rights of Persons with Disabilities (UNCRPD) served as a commitment by the Government of Canada to advance the rights of individuals with disabilities. The legislation established Accessibility Standards Canada (ASC) to develop national accessibility standards. ASC has established several technical committees that are actively developing standards that remove barriers in several different priority areas. Compliance with standards developed by ASC is voluntary unless they are adopted into regulations.

2040 is not that far away to fulfil Canada’s commitment to ensure that all Canadians, including the over 6 million individuals with disabilities, have equal opportunities to fully participate in society.

ABLE2’s work is part of the solution. Our belief in a society where everyone is included, valued and respected is at the heart of what we do. Our programs and services are designed to support people with disabilities achieve what they want in their life. That can be gaining their independence, creating a social network, obtaining an education or landing a job. We look forward to working with Ms. Cadieux and our other partners to achieve a Canada that celebrates everyone’s abilities and achievements.

To learn more about ABLE2’s programs and services please visit our website or contact me through LinkedIn.

Published by

Heather Lacey

Experienced Non-Profit Executive DirectorPublished

Read Heather’s other articles here

Julie’s Story – A Mother’s Love

By Julie Cashman 

May 2023

Hello, I’d like to introduce myself, I am Julie Cashman and I am co-chair of Consumer Action Committee with ABLE2. This is my story about me and my mom Joanne Cashman who died of ovarian cancer in October 2019. 

I first got epilepsy when I was six years old, and my mom was my biggest supporter in life. She’d stay by my side taking me to doctors appointments and rushing me to the ER when I had seizures and even keeping a journal of my seizures and meds.

Over the many years growing up she became my biggest supporter for a disabled person who had epilepsy. She got me involved in ABLE2 formerly Citizen Advocacy because my mother saw how I was struggling in life with my disability to make friends. It’s only because of ABLE2 and the help of my mother I went onto have 2 matches plus my current match.

Without the support of my mom, I would not have known about ABLE2 or other resources such as Build Community or Reach lawyers for people with disabilities, that CRA does incomes for free as long as you are on ODSP, subsidy housing or even having an RDSP account as a disability person for my retirement. I now in turn have become co-chair of the Consumer Action Committee and a board member on the ABLE2 Board of Directors. I also volunteer in my apartment building on Fridays for the veggie Friday program supporting tenants where I live. My goal in life is to be happy and I love volunteering.

Without the support of my mom, I would not have known about ABLE2 or other resources such as Lifetime Networks or Reach lawyers for people with disabilities, that CRA does incomes for free as long as you are on ODSP, subsidy housing or even having an RDSP account as a disability person for my retirement. I now in turn have become co-chair of the Consumer Action Committee and a board member on the ABLE2 Board of Directors. I also volunteer in my apartment building on Fridays for the veggie Friday program supporting tenants where I live. My goal in life is to be happy and I love volunteering.

By Julie Cashman, Co-chair of Consumer Action Committee

Confessions of a Volunteer Fraud

By Rick Burns, ABLE2 Match Ally and Board Member (as published in the May 2023 ABLE2 Monthly Moments Newsletter)

I have a confession to make. People sometimes think I am such a good person for taking part in ABLE2’s Matching program, and that through my “volunteering”, I am making a real difference in my community. I need to get this off my chest though:  I have not considered myself a volunteer for a long time. 

Let me take a step back and explain the situation. 

I don’t remember the exact date, but it was a clear fall day circa 2011. I was surprised to feel a tad nervous as I approached his building, not surprising considering the novelty of the situation.  Really, how many times has anyone been formally matched with another adult for the sole purpose of friendship? 

My first impression – he was a hulk of a man.  As I walked closer to him, alongside the social worker, feigning a slight wave of anxiety, my internal monologue continued to pose the question: “What on earth am I getting myself into?”. 

Before I knew it, with smiles and outstretched hands, I heard ““Hi, I am Andy” and the rest, as they say, is history. 

Meeting Andy that day was the culmination of some inner soul searching.  I had been looking for some time for a meaningful and personal way I could contribute and give back to the community. Volunteering was always something I knew I wanted to do, but the idea of doing more work after coming home from the office was not overly appealing.  It was through this minimalist lens that I began slowly, hesitantly looking into volunteer opportunities around my neighbourhood. Not going to lie, I was skeptical that I could find something meaningful AND easy.  As selfish as it may sound, while my overall focus was on “giving back”, I could not silence the little voice in my head” “what would I get out this”. 

I wanted to volunteer, but kind of in a lazy way, if such a concept can exist, so when I stumbled upon ABLE2’s matching program, I was intrigued. What would be the harm in filling out this little application to start? 

Fast forward a few months, I was somewhat uneasy as I sat down for the first time with the social worker to discuss potential matches. I nervously thought: how do I express to them in a sensitive way that I am not equipped to be a caretaker and that all I have to offer is my (well-honed) ability to simply hang out? So, without shame, I provided an overview of my “social” resume:  I like to chat, sit, watch sports, drink the odd beer, go to the gym, watch movies…….I was putting all of my cards on the table and was considering strongly the chance I would be rejected on the spot. 

Either by happenstance, luck – or more likely due to the incredible matchmaking services at ABLE2 – they found me what turned into a perfect match. 

“Do you like movies? Would you come to my next movie night?  Would you ever go to the pub with me?” I don’t know if these were the exact three questions Andy asked me the evening we first met, but it was definitely within the first few minutes.  My nerves now aside – without thinking – I blurted an enthusiastic: “Of course, sounds fun!”.  

I had no idea then that from that day on I would be seeing Andy for next twelve years and counting. I hang out with him now every week, usually on Thursdays. I go to his place or mine or we go to the Pub to watch the game – we eat chips, pizza, wings (and beer for me!), chat and just chill out, which is pretty much my MO whenever I see any of my other family or friends. I should also mention that Andy is a great cook, and he has made amazing meals for us on many occasions. I have also learned that one of the greatest feelings in the world is spending time with someone who is genuinely happy to see you each and every time. 

I remember the first time the social worker followed up with us about our match sometime after our first meeting. In a nutshell (while being polite of course), I said something to the effect: “I do not think we will really need your services”. 

And this brings me to the crux of this story, I have not considered hanging out with Andy as volunteering for quite some time. Andy is my good friend, he is now like family. 

In the end, I would recommend an ABLE2 Matching program to anyone.  It is a chance to make a real meaningful difference in someone’s life, including your own. And – who among us could not use another friend? What other life experience can be so rewarding with the only effort being “show up” and “enjoy”? 

Anyways, that is my confession. I feel much better and thank you for reading. 

-Rick 

Volunteering with ABLE2: Making a Difference in Your Community

Volunteerism is the foundation of ABLE2

ABLE2, formerly known as Citizen Advocacy of Ottawa-Carleton, started in 1974 by David Hall, and Eileen Scotton was the first Executive Director. ABLE2 aims to create opportunities for people with disabilities to lead fulfilling lives by providing them with support, resources, and services.

Initially, the organization recruited volunteers from local communities who would offer one-to-one assistance to individuals with intellectual disabilities through the Matching Program. Over the years, ABLE2 expanded its services and programs to support a broader range of people across the disability spectrum, including Build Community, Person-Directed Planning and Facilitation, Funding Brokerage and the Fetal Alcohol Resource Program.

There are several ways to volunteer with ABLE2. One of the most popular options is still through the Matching Program. The program matches individuals with intellectual disabilities with volunteers from the community who act as their Ally. Volunteer Allies provide one-to-one support, assistance, and guidance to help the individuals achieve their goals and lead meaningful lives. The benefits for those who are matched include: reduced loneliness and isolation, help to achieve hopes and dreams, assistance to develop personal networks and relationships, decreased vulnerability, increased self-confidence and improved mental and physical health.

Grace and Maryse’s Story

Grace Daigle, who was feeling lonely after moving to Ottawa from Toronto, joined ABLE2’s matching program to find a companion. Maryse Cote-Singer, a volunteer, joined the program after learning about the need for volunteer allies on the organization’s Facebook page. Maryse saw many ways she could help Grace, and she provided practical assistance as Grace navigated a new city. Now, their visits are all about having fun. They celebrate milestones, birthdays, and holidays together, and spending time together and talking about their week means the world to both of them. Maryse considers Grace part of her Ottawa family, and Grace says Maryse makes her day.

ABLE2 achieves its goals is through volunteers. Volunteers play an essential role in the organization, and their contributions are critical to offering friendship and support to those in need.

By volunteering with ABLE2, you can make a difference in the lives of individuals with disabilities in your community.

Published by

Heather Lacey

Experienced Non-Profit Executive DirectorPublished

Read Heather’s other articles here

Canadian Disability Programs

I have been watching how the disability benefit programs are developing for both the province of Ontario and the federal government. Patience remains the watch word for Ontario residents with disabilities as the federal senate debates a new Disability Benefit that would add federal dollars on top of provincial support allowances and other income sources (CPP, veteran’s pensions, private insurance, etc.).

The Liberals’ 2020 Throne Speech promised fast action on the benefit and – in terms of parliamentary speed – they delivered. The bill unanimously passed third reading in early February and went immediately to the Senate. But senators have slowed the pace as they ponder how many of the bill’s original cracks need filling.

Disability Without Poverty (DWP) is urging the senators to “move to Royal Assent with all haste” to prove that the government values the lives of Canadians with disabilities. The group points to the fact that 28% of working-aged Canadians with severe disabilities live in poverty (compared to 10% of people with no disability.) It wants the benefit paid without any claw backs but is willing to let the federal government work out those details once the framework of the benefit has been safely established. (An earlier bill died when the Liberals called an election in 2021.)

According to the Globe & Mail, some senators want to fully study the implications of Bill C-22 in relation to existing programs. Senator Kim Pate worries that without more clarity, recipients may lose their benefit income to private insurance companies and the provinces.

Meanwhile last fall, Ontario reduced its claw backs on income earned by residents receiving monthly disability support program assistance. After raising monthly rates by 5% to $1,328, the province announced it would allow recipients to keep up to $1,000 of earned income before cutting benefits. (A year ago, a wage earner would have only kept $600 of their $1,000 pay cheque.)

Community Living Ontario produced a chart to show the new policy’s effect on support payments, pointing out that recipients earning less than an additional $500 a month remain below the poverty line. The organization noted that the government was pegging ODSP and Assistance for Children with Severe Disabilities (ACSD) payments to the rate of inflation early this summer. 

ABLE2 supports both government’s effort to put this framework in place and to bring measures forward that give a basic income to people with disabilities. We will continue to watch the progress of Bill C-22 and encourage the Senate to act quickly in completing their review. People with disabilities are struggling everyday to make ends meet — asking them to wait a little longer does not recognize their true value to our community and society as a whole.

Published by

Heather Lacey

Experienced Non-Profit Executive DirectorPublished

Read Heather’s other articles here

Faces of ABLE2 – Anna Bilsky

(as published in the March 2023 ABLE2 Monthly Moments Newsletter)

In honour of Women’s History Month, we would like to recognize one of our many amazing volunteers. Anna Bilsky has been a volunteer with ABLE2 almost from the beginning. Wanting to set an example of volunteerism for her young children, she felt the Matching Program would be a good fit for her. For the past 40 years Anna has balanced volunteering with raising a family and a very accomplished career.

Her first match Michael was very shy and reserved when she met him. Michael had never had a person in his life who was not a family member or a paid support worker. Together they began a 12-year journey of friendship and learning. Michael’s world opened up and his life was soon full of activities and friendships. “I would like to believe that I played a role in that,” says Anna. “Michael was so busy it was hard to get time with him.” The match had accomplished what was intended and they ended the match after 12 years but not the friendship. Michael passed away but Anna will never forget what a wonderful and kind man he was.

Anna was next matched with Ruth. Ruth loved to shop! They spent a great deal of time at Carlingwood Mall, especially Coles. When it came time for Ruth to move into a home Anna was right there helping Ruth’s sister to find the right place for her until her death. Ruth lovingly referred to her as the “third sister”.

Anna’s third match was Marjorie whose passing was featured in our last newsletter. After Marjorie’s husband George passed away, she felt utterly alone in the world. Her grief was compounded by various health issues. Anna helped bring her out into the world with weekly coffee meetings and scratch cards (they called their moment of hope). Anna provided Marjorie with support and was often the voice of reason in her life. 

Anna has also been matched with a second person, Veronica. She has never really felt like Veronica is a “match” as they have had a close friendship for 30 years after meeting while serving on ABLE2’s Board of Directors. Anna has been a big part of my life and has accompanied me on medical appointments and to family weddings. She has really helped me,” says Veronica.

Anna’s time and friendship for people in her life has been profound. Anna is a true leader. ABLE2 celebrates all she has done for her community.

THANK YOU, ANNA!

#FaceOfABLE2

In Honor of Black History Month

In recognition of Black History Month, I wanted to share research that has been done on the additional barriers that people of color with disabilities face in addition to managing their daily health conditions.

“Disability organizations in general “don’t talk about race, and specifically racism and anti-Black racism,” says Sadora Asefaw, who studied the experiences of Black families raising children with developmental disabilities for a master’s degree in environmental studies from York University and is now working on an independent digital storytelling project about how Black families and families of color experience disability.

Sadora Asafaw learned through interviews for her thesis: Amplifying the Experiences of Black Youth with Developmental Disabilities and Their Families: At the Margins of Policy and Practice, that racism, bias, socioeconomic status, and gender inequities produce barriers that affect the care pathways of black youth and their families.

Sherron Grant and her family experienced a system of support that did not address their needs when her son was diagnosed with Pervasive Developmental Disorder – Not Otherwise Specified (PDD-NOS) and, later, autism. “During these events, parents would discuss navigating the medical system, the school system, gaining resources; but it was not from a lens that I could relate to,” Sharon explains in an article by Autism Ontario. As a result of her frustration, she and her husband created The Black Parents of Children and Adults with a Disability Support Group (BPSG) to provide a safe space for families of African descent to come together to meet and connect, share resources, expertise, and needs, and to inspire and support one another through our unique, challenging, and isolating journey of raising Black children or supporting a sibling of any age with a disability. Today, over 130 families meet on Zoom and connect and share over Facebook.

BPSG is a volunteer-run group that meets the second and fourth Tuesday of each month via Zoom. To register or for more details, email bpsgroup2020@gmail.com. You can also find them on Facebook.

Published by

Heather Lacey

Experienced Non-Profit Executive DirectorPublished

Read Heather’s other articles here

Thank-you David Onley

I would like to recognize and thank David Onley, Ontario’s 28th Lieutenant Governor who passed away on January 14th for his service.

It is not often that we see representation of people with disabilities in community and leadership roles. We appreciate the role model Mr. Onley was for the disability community when he was with Citytv and more prominently as the lieutenant-governor for Ontario.

Using a motorized scooter throughout his life after contracting polio as a child he would insist on delivering the Citytv news with his cane or scooter visible, bringing disabilities into the public view and setting the stage for a lifetime of advocacy on accessibility rights for all.

His son said at his father’s funeral Monday that his greatest wish was for all disabled people to have the ability to fully participate in the social, cultural, and economic life of Canada.

When he became lieutenant-governor he discovered that the legislature wasn’t fully accessible. Mr. Onley set about addressing this situation. “He wouldn’t accept temporary accessibility measures,” Jonathan Onley said. “It needed to be permanent. He wanted to ensure all those who came after him had the same access, the same ability to fully participate.”

At ABLE2, we are committed to the same values of inclusion, respect, and dignity for all people with disabilities.

More than 50% of Canadians have a relative living with a disability. In Ottawa, there are 161,445 people living with disabilities. Three quarters of this population has more than one disability and one third are over the age of 65. This marginalized population is diverse in ethnicity, age, and type of disability.

ABLE2’s programs channel the power of compassionate people to provide hope and support to the city’s most vulnerable citizens in several ways.

Please visit the website to learn more about the programs and services.

If you know someone that may need support, please call 613-761-9522. 

Published by

Heather Lacey

Experienced Non-Profit Executive DirectorPublished

Read Heather’s other articles here